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Professor Darlington’s research programme focuses on measuring and improving Quality of Life (QoL) for children and young people with chronic illnesses. Her work emphasizes coping strategies and the development of interventions to support parents and children. She has established a strong international track record in researching predictors of adjustment, Patient Reported Outcome Measurement, and intervention development in Paediatric Palliative Care, focusing on understanding how parents cope when faced with their child’s imminent death. Key research questions include understanding how children with complex illnesses and their parents can adjust, the effectiveness of interventions designed to support families in enhancing quality of life, and how to measure outcomes related to quality of life. She has developed a theoretical framework on parental coping to underpin her work, which includes clear testable hypotheses that drive her research. She chairs the European Organisation for Research and Treatment of Cancer Quality of Life Group. Her successful grant applications, as Principal Investigator or co-Principal Investigator, have been funded by national bodies such as the Brain Tumour Charity and British Renal Society, as well as international organizations like EORTC. She actively mentors clinicians for various fellowships and awards and has significant experience in developing and refining questionnaires to assess health-related quality of life in oncology.
University of Southampton • Southampton, England
Focuses on measuring and improving quality of life for children and young people with chronic illnesses.