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Cristie Upshaw Travis founded the Hereditary TTP Registry, the world's largest registry for patients with hereditary thrombotic thrombocytopenic purpura (hTTP), also known as Upshaw-Schulman syndrome. Under her leadership, the registry has enrolled 231 participants across 18 countries. The registry aims to collect comprehensive data on hTTP patients and their relatives to enhance understanding of the condition, address unmet needs, and improve patient care. The registry also engages in research activities to investigate hereditary TTP and offers support to individuals with potential diagnoses. Cristie has been actively involved in medical research, contributing to advancements in the knowledge and treatment of this ultra-rare blood coagulation disorder.
Hereditary TTP Registry • Louise, MS
Founded and manages the world's largest registry for hereditary thrombotic thrombocytopenic purpura (hTTP).